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South Asian Heritage Month: Genetics, Identity and Health Equity

Genetic Experts

South Asian Heritage Month is an opportunity to celebrate the histories, cultures and contributions of people with roots in Afghanistan, Bangladesh, Bhutan, India, the Maldives, Nepal, Pakistan and Sri Lanka. This year’s theme, Unity in Diversity, is especially meaningful in genetics. Every person carries a unique genetic story, shaped by ancestry, family history, migration, environment and lived experience.

From a genomic perspective, South Asian heritage reminds us that no community can be defined by a single narrative. South Asia encompasses extraordinary diversity in languages, faiths, cultures and population histories. Recognising this diversity is essential in genomic medicine, helping clinicians interpret genetic information more accurately, understand inherited conditions in context, and deliver care that is personalised, culturally responsive and respectful.

Why representation in genetics matters

Historically, genetic research and reference databases have disproportionately represented people of European ancestry. As a result, interpreting genetic variants can be more challenging for individuals from under-represented populations, including many South Asian communities. Improving representation is therefore not only a scientific priority but also a matter of health equity.

Greater diversity in genomic research supports more accurate diagnoses, improved risk assessment, a better understanding of rare inherited conditions, and fairer access to the benefits of personalised medicine. Community-led initiatives, including large-scale genetics and health studies involving British Pakistani and British Bangladeshi participants, demonstrate how partnership, trust and meaningful engagement can help reduce health inequalities and improve care for future generations.

Family history, culture and conversation

Family history plays a central role in genetics. For many people, conversations about health, inheritance and genetic risk are closely connected to cultural values surrounding privacy, family responsibility, marriage, caregiving and community. These discussions can be sensitive, and there is no one-size-fits-all approach.

Genetic services have an important role in creating safe, supportive spaces where people can ask questions, express concerns and make informed decisions. This includes using clear, accessible language, working with interpreters when needed, avoiding assumptions, and recognising that cultural humility is just as important as clinical expertise.

Building trust in genomic medicine

Trust is fundamental if genomic medicine is to benefit everyone. It is built through listening, transparency and genuine collaboration with communities. Building trust also means recognising and addressing barriers that some people may experience, including language differences, digital exclusion, previous experiences of healthcare, stigma, or uncertainty about how genetic information will be collected, stored and used.

South Asian Heritage Month encourages us to celebrate identity, heritage and belonging while reflecting on how healthcare services can become more inclusive. In genomics, this means designing services that are accessible, culturally responsive and developed in partnership with the communities they serve.

Our commitment

As genomic medicine continues to advance, we all share a responsibility to ensure its benefits are distributed fairly and equitably. This includes improving representation in research, supporting informed decision-making, listening to community voices, and addressing inequalities in access, diagnosis and care.

This South Asian Heritage Month, we celebrate the richness, diversity and resilience of South Asian communities and recognise the vital contribution that inclusive genomic medicine can make to improving health outcomes for current and future generations.

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